A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

12:05 AM

Wednesday

The Pulmonologist on call today informed us that because of the Pneumatoceles (holes) in Sam's lungs and the risk of associated infection, he needs 14 days on the IV antibiotics, rather than 10. It's a bit of a setback, but we'll just do the best we can.

Obviously we'd rather be home together, but we also don't want to bring him home prematurely if he's not on track for a full recovery.

We were also told that his NJ tube is not in his upper intestine, it's just coiled up in his stomach. The reason we were okay with the NJ tube is because it bypasses the stomach, ensuring he does still get hungry so we can continue to work on his recent feeding aversion. We'll be talking with the doctor about that tomorrow.

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