A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

12:02 AM

Friday

Sam has still been fairly lethargic today. He doesn't always appear stressed when he's sick, but he does now. Just this evening he started cheering up a bit. This boy is definitely enamored of his mom - I think in some small way he knows of her importance in his life and treatment. He's a very lucky little boy.

The doctors have some new theories, some old theories, plenty of strange and exotic tests to run, but no diagnosis yet. We won't prognosticate any further until we have something solid. We have resigned ourselves to the fact that this is our new life, so any diagnosis will be good news in the sense that it gives us a direction; a course for treatment, even if not a course for cure.

The other kids are having a blast in Hartford with the Roemers, only occasionally waxing homesick. the family distance is hard on all of us.


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