A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

5:41 PM

Another Bronchoscopy

Another bronch was ordered for this afternoon. Sam was anesthetized for it again. Due to his history of rare and serious pneumonias, it's no longer safe to assume that a simple 5-day penicillin variant will knock it out.

True to form for our medically complex conundrum, this one is serious. It's not pneumocystis, but the biopsy revealed a large ball of pus in his lower right lobe. It was successfully extracted, and Sam is recovering nicely. He is currently on 3 antibiotics to treat all of the possible infections. Once the culture grows, we'll be able to narrow it down.

Once again our frustration is getting caught up in the short game. The real issue is not the pneumonia, it's what's causing it over and over and over.

The silver lining to being in the hospital again is that this brings the issue to the forefront of the doctors' minds. We need the brain trust to invest some time into getting us a diagnosis and long-term treatment plan. We need the fence on the cliff, not the ambulance in the valley.

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