Sammy

Esther had a couple interesting conversations with the doctors today. Dr. Pryor (Pulmonology) warned us that Staph pneumonias can be tricky (especially for an immune-compromised patient) and can really wax and wane as they die off. He told us to be prepared for good days and bad days. They will be taking another x-ray Friday to ensure his Pneumatoceles are not abscessing. If we end up on a longer IV antibiotic regimen to kick this infection we may get it to go, having a PICC line to take home.

Dr. Shapiro from immunology also reinforced our go-forward protocol for dealing with Sam’s warning signs. Fevers win us a free pass to the Dr. for an x-ray. Same with 3 days of sniffles. Each and every symptom will be scrutinized more closely by the doctors, especially immunology. Esther told Dr. Shapiro he’s welcome to make house calls, but in lieu of that I think we’ll just take the VIP pass to Midwest Immunology. Maybe they’ll rent us out a broom closet.

In reality though, we’re hopeful that whatever antibiotic cocktail they cook up for us long-term, it will help him stay healthy for longer than 2 weeks at a time. It won’t be long before he wants to start being a kid, and we need to do what we can to make that possible.