A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

10:31 PM

Monday PM

Our original thought was that it would take weeks to get on the schedule to have Sam's blood tested in Maryland, but when they found out that Sam's in the hospital, they found an opening for tomorrow! The lab techs drew 8mL this afternoon and it is now en route to the NIAID lab in Bethesda.

It will still take 2-6 weeks to get results, but at least we don't have to wait to get things started.

Since Hyper-IgE is where most of the medical team is leaning, it's important to get this result so we can confirm or keep looking.

We are still a little anxious about his Pneumatoceles. We are hopeful that tomorrow's x-ray will at least not show the holes getting larger or abscessed.

More tomorrow...


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1 comments:

LeFevre's said... @ June 10, 2008 at 3:06 PM

Thank you for keep us updated on Sam via your blog. I check it every day to read the latest news. So happy to hear that he is on the docket in MD to have his blood tested. I hope it will give you more difinitive answers. You are in our constant prayer.

love,
Shawnee