Sammy

We just found out that Dr. Steven Holland in Bethesda, MD will take a sample of Sam's blood and test it for the STAT3 mutation that causes Hyper-IgE Syndrome. This is great news as it will possibly give us a definitive answer on whether it's the underlying source of these infections. We still need to work out the details, but it's very positive news.

Sam's pulmonologist today also warned us that the Pneumatoceles (small holes or cysts) in Sam's lungs appear to be maturing on the latest x-ray. They'll be watching it carefully over the next 24 hours to see if they respond to treatment and Sam's natural (albeit weak) ability to fight off infection. If they start to abscess, further action will be needed.

We are hopeful, but certainly not out of the woods yet...