A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

3:13 PM

Saturday

Well, Sam has not eaten any food since Wednesday. He's getting the fluid he needs, but he's losing weight. The doctors are saying he'll eat when he's ready. You can tell from his cry that his throat is still sore and he's not feeling very well yet.

He is still on oxygen through a nasal cannula. His oxygen saturation stays high when O2 is removed, but his respirations/min go up as well. His body has learned to adjust oxygen levels by increasing his breathing rate.

He was moved from Vancomycin to Oxacillin today. The Oxacillin is more targeted to Staphylococcus Aureus, whereas the Vancomycin is more broad spectrum, often used as a "drug of last resort" for methicillin-resistant strains of staph.

He seems to be in pretty good spirits today, with plenty of smiling and talking. If we could only get him to eat something...

1 comments:

Unknown said... @ June 8, 2008 at 7:40 AM

Ihope the Oxacillin assists Baby Sam with his latest visit to the hospital.