A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

9:24 PM

Sunday

Sammy did well today.
The test result for both CMV & HIV have come back negative; we aren't surprised by that.
The feeding tube was turned off today and Sam has been taking bottles well. The decision to take the tube out completely may happen as soon as tomorrow. He is doing well on his new hypo-allergenic formula. He seems to be gaining more strength and trying new things.

Another bacteria was discovered from his bronchoscopy today, mycoplasma. As a result, he started on another antibiotic. The good news is that his current IV has been in place for over 24 hours without incident. The longer this one stays in place, the less likely it is we have to do a central catheter.

1 comments:

Anonymous said... @ April 7, 2008 at 10:30 AM

Esther and Steve,

Please know that our prayers are with you as you struggle through this. I thought about you all day yesterday and was glad to get the blog update. I will have to show dad how to do this so that he can keep updated also.

all our love Carl and Harriet
Uncle Paul and Aunt Marianne