A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

8:58 AM

Positive Results

One of the rounding clinicians came in last night and informed us that his lung tissue sampled positive for Pneumocystis.

http://kidshealth.org/parent/infections/lung/pneumocystis.html

Pneumocystis is obviously not the concerning part of the diagnosis, what's of concern is the underlying lack of immune system defense that allows a common fungus to act the way it does in Sam's body. He started on another PCP-specific antibiotic and an aggressive steroid treatment.

We are anxiously awaiting yet more test results to help us understand the underlying immunodeficiency and he we can treat it. None of the options sound very good to us.

We appreciate the prayers and support from all of you.
More later...

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