A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

7:15 PM

Saturday

Well, Esther stayed the night at home last night, and I camped at the hospital with Sammy. He did very well, and he's starting to get some appetite back.

By far the worst part of the day was at about 7:30 am the morning shift nurse came on to check vitals and noticed Sam's IV was occluded and had dumped a couple hours' worth of solution and antibiotic into Sam's arm, not his vein. His whole arm was swollen around his tape, and was very tight. It looked excruciating, but he did not complain. I was irritated that the night nurse either did not notice it, or decided not to do anything about it at the end of her shift. I'd like to assume the former.

The problem, though, is the fact that every (and I mean every) useful vein has been tapped and has subsequently occluded and/or collapsed. We're being told he needs to be on IV antibiotics for 10 more days, so there's a possibility of having to install a PICC line or some other semi-permanent peripheral line. Yuck. This poor kid has been stuck so much lately. Last night on the third IV attempt he didn't even flinch. I will take that as an answered prayer.


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