A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

6:10 AM

Saturday AM

The lab is checking Sam's counts daily now, watching for reactions to the various medications. The doctors think he is having an adverse reaction to the Pneumocystis antibiotic Bactrim. They've moved him to an oral antibiotic now instead (Mepron). I guess they're hoping that will stabilize his white blood count and eosiniphils. The steroid prednisone is now being administered intravenously instead of orally.

Our discharge date was pushed back again (not that we ever really had one expressed, only implied). It looks like Monday or Tuesday now, assuming we can get Sam to react well and take both the antibiotic and the steroid.

Not surprisingly, our doctors do not all agree on everything. We can understand and even appreciate that, but we get a different picture painted for us every time the door opens.

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