A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

8:26 AM

3AM Hospital Run

Sam was panting tonight, apparently really laboring to breathe. It was 3AM and he was not sleeping, just working on inflating and deflating those little lungs. We called our pediatrician's emergency nurse line. When she heard him breathing she told me to "hang up the phone and call 911".

Even as we got him ready to rush off to the hospital in the middle of the night and gave him a blessing he was smiling and cooing at us.

The bronchoscopy is scheduled for 4:30PM Thursday.

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