| 11:01 AM |
Sunday AM |
Well, it's been a good couple of days. Sam is taking well to the new antibiotic, and is not fighting the oral prednisone (steroid) too much. He actually had a solid stool today (which doesn't sound like a big deal) but after 6 weeks of diarrhea, that's a big deal. Plus, his blood work from today is the best he's had in 4 days.
We are fairly certain we'll be discharged tomorrow, and we are doing all we can to have his room ready. Without a real diagnosis, we are being very cautious with his home treatment. Here is what we know:
1. This is more than just a milk allergy. He has some mild to moderate immune deficiency.
2. His eosiniphil count is very jumpy. When those get too high, his immune system is compromised. The steroids help keep the eosiniphil count down.
3. His neutrophil count is very jumpy. You need neutrophils to fight infections when they first start.
4. He still has a very dangerous form of pneumonia that requires 3 weeks of treatment.
After that, there's not a lot we do know. We are going to do our best to protect him from school germs and other general nasties until we have more answers. His only outings for the next 6-8 weeks will be to the immunology clinic. Stating that is just as much for mom and dad as it is for the reader. It's been difficult coming to grips with the long-term nature of his illness. We are getting better, and we'll take the victories, no matter how small.
Our hope and prayer is that in due time we will have a diagnosis, or at least a long-term treatment plan and prognosis. This little man has big plans, and we need to keep him healthy!
We are fairly certain we'll be discharged tomorrow, and we are doing all we can to have his room ready. Without a real diagnosis, we are being very cautious with his home treatment. Here is what we know:
1. This is more than just a milk allergy. He has some mild to moderate immune deficiency.
2. His eosiniphil count is very jumpy. When those get too high, his immune system is compromised. The steroids help keep the eosiniphil count down.
3. His neutrophil count is very jumpy. You need neutrophils to fight infections when they first start.
4. He still has a very dangerous form of pneumonia that requires 3 weeks of treatment.
After that, there's not a lot we do know. We are going to do our best to protect him from school germs and other general nasties until we have more answers. His only outings for the next 6-8 weeks will be to the immunology clinic. Stating that is just as much for mom and dad as it is for the reader. It's been difficult coming to grips with the long-term nature of his illness. We are getting better, and we'll take the victories, no matter how small.
Our hope and prayer is that in due time we will have a diagnosis, or at least a long-term treatment plan and prognosis. This little man has big plans, and we need to keep him healthy!
0 comments:
Post a Comment