A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

8:19 AM

Relapse

During the past two weeks we've noticed occasional wheezing and some labored breathing. Esther has said Sam looks a little gray, though I haven't noticed it.

She took him in for his 4-week follow up with Dr. Wheeler the pulmonologist on Wednesday and due to the symptoms, he ordered a CT (Computed Tomography) scan. The results were not good. We find ourselves with still diminished lung capacity and still significant growth of infiltrates in the lungs. They are still talking about reflux or aspiration of food, but as Dr. Wheeler has said, "Nothing is ever easy with Sam."

He is ordering a Bronchoscopy, Upper GI scope and lung biopsy for later this week.

0 comments: