A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

7:02 PM

Sunday Update

We have been able to successfully treat Sam's third round of pneumonia at home. It's fairly safe to say we are through the worst of it. Our round-the-clock hydration and respiratory watch paid off and we only had a couple close calls. He'll continue his antibiotic regimen until next Friday, with a pulmonary follow-up this Thursday. He is also just days away from being completely off his steroid treatment, at which point our immunologist will be able to begin some tests to determine what kind of underlying immune deficieny is afflicting Sam. We are hoping to have a diagnosis soon so we can begin some kind of long-term treatment.

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