A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

9:20 AM

A little too quiet...

Yep, we cursed it. Things were going pretty well.

Some light sniffles last week gave way to some severe nasal and post-nasal congestion which has put a big damper on Sam's ability to eat. Caloric intake is dropping below where it needs to be. Even more concerning is his inability to shake the sniffles. Twice now it's escalated and his sniffles have turned into pneumonia.

Took him in for an x-ray yesterday and he is cloudy again. Back on Bactrim to try and clear the pneumonia at home. As long as he can breathe, we're trying to keep him stable at home, avoiding the hospital at all cost. We've also discovered a strange sore on his leg that the immunologist is going to weigh in on, hopefully today.

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