A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

9:12 PM

Early May

The relative calm of the last four weeks has been a welcome relief. Our lives have certainly not been the same with Sam in isolation - but in comparison to the weeks spent in the hospital, it's a cake walk.

Sam has been taking his Elecare formula very well, and is bulking up quite a bit. We are just 2 weeks away from being off of steroids which will be the gateway to possibly having a diagnosis. We are cautiously optimistic of some smooth sailing for a few months.

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