A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

8:07 AM

Monday morning

Sam is looking even better this morning - the oxygen was disconnected this morning, and last I heard, he has been breathing air on his own for over an hour, maintaining safe blood-oxygen saturation levels. One cord down, two to go. Rumor has it we'll be able to get rid of the IV later today as well.

One of the doctors came in this morning and said he'd need to stay a few more days to finish the antibiotics (I'm sure HealthPartners would love that!), and Esther insisted we could finish that up at home. It's looking REALLY good for a Tuesday discharge.

On the docket for today: xray at 1:00, hoping for some signs of improvement there. Swallow study thereafter to look for any ingestive abnormalities.

More on test results later...

1 comments:

Monica said... @ March 3, 2008 at 10:00 AM

Steve,

My heart and prayers are going out to you and yours. I hope little Sammy and Esther will be able to leave the hospital soon.

With all my love,

Monica Polo