A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

3:26 PM

Late Saturday Update

Well, according to this morning's xray there was little (if any) improvement since Thursday. But, as we've heard, the chart is less important than the patient. Sam the xray film is very sick, but Sam the baby is having a very good day.

Spirits are very high as he has really bounced back from a bad morning. He has been alert when he's awake, coughing less, needing less oxygen, and sleeping soundly. In fact, for the first time in over a week, Esther left the hospital for a couple of hours, and he took a bottle from dad! It's been a long time since he's done that.

We are cautiously optimistic at this point that he really is making strides in fighting this off. Whether it's clinically attributable to the Azithromycin or the steroid, I know that the prayers have lightened our load.

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