A chronicle of our trials and triumphs as we battle Hyper-IgE syndrome (Job's disease) with our baby boy Sam.

8:14 PM

Wednesday

Wednesday was when things really took an unexpected turn for the worse. After some concern over his labored breathing pattern and severe coughing bouts, another xray revealed that the pneumonia had actually spread to both lungs since beginning treatment. As the antibiotics were not improving the situation, the pneumonia was either viral or a more severe bacterial infection.

Until now, we'd really felt that any day now we'd be heading home, well on our way to recovery at home. The events of today really dealt a severe emotional blow to both of us. Esther had not left the hospital since arriving Saturday and was really looking forward to some time with the kids and a good night's sleep. I arrived at the hospital after the kids were in bed and we had a good cry together.

Dr. Amanda came in and we had a lengthy conversation about next steps and how we ensure that progress is made and Sam gets appropriate attention. It was time to step it up.

We gave Sam another blessing tonight, and we had a great experience together.

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